Throughout my career, I’ve spoken with many parents who, after learning their child has ASD, find themselves under great pressure and often surrounded by a range of negative emotions. Many struggle with questions like, “Why my child?” “Did I do something wrong?” “Will my child have a meaningful future?” “Could this diagnosis be a mistake?” Some even reflect, “I was a bit different as a child and turned out fine—might my child as well?” These emotions and thoughts may persist for weeks, months, or even years. A question that frequently emerges, especially for mothers, is: “Should I quit my job to stay home and support my child’s intervention?”
In a groundbreaking study in 1973, Dr. Ivar Lovaas, mentor to AP’s founders, highlighted the critical impact of parental involvement in ASD intervention. The study examined two groups of children: one with parents actively participating in the intervention process, and the other without such involvement. Results revealed that children whose parents were engaged continued to make progress even after the intervention ended, while those without parental involvement experienced regression.
In this study, the involvement of parents proved crucial. Through specialized training, parents gained the skills needed to help their children achieve significant progress. As a result, many of these children developed strong communication abilities, built meaningful friendships, and, most importantly, went on to lead fulfilling, high-quality lives.
50 years later, AP continues to believe that parental involvement is crucial in the autism intervention process. However, our experience has shown that parents should maintain their primary role as caregivers, rather than adopting the role of a therapist. Therapists work with objective goals and a certain level of detachment, while parents provide the foundation of unconditional love and acceptance.
That said, parents have a vital role in supporting their child with ASD throughout the intervention process. Their main responsibility is to learn how to provide effective support at each stage. This includes understanding the core principles of autism intervention, recognizing that behavior is learned through experience, and identifying the underlying causes of their child’s meltdowns, selective listening, or picky eating. Although these behaviors may serve some adaptive purpose, children can be taught more constructive ways to communicate and manage challenges. When parents gain a clear understanding of their child’s needs and feel confident in how to respond, therapists can work with them to reinforce these strategies, leading to smoother and more positive family dynamics.
The decision of whether a mother should leave her job to support her child’s intervention is deeply personal, shaped by both external circumstances and individual factors. However, the key to fostering a child’s growth is not just the amount of time parents spend with their child, but also the continuous guidance and support they receive from a clinical team. This ongoing support enables parents to gain a deeper understanding of their child’s needs, learn effective strategies, and apply them in ways that enhance the well-being of the whole family.